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Social profil

 
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kaare



Joined: 24 Nov 2008
Posts: 18
Location: KØBENHAVN

PostPosted: Wed Jun 23, 2010 15:05    Post subject: Social profil Reply with quote

Foreningen er ved at udarbejde en "Social profil" for Ataksi, for foreningens medlemmer
Det er tanken at den skal udarbejdes i samåd med paraplyforeninegn "Sjældne diagnoser"
Profilen som består af" medicensk fakta samt en tjekliste" kan bruges til, at give til, sin egen læge, visitator, sagsbehandler o.l.
Der har vist sig stor interesse i Sjældne diagnoser for udarbejdelse af en sådan profil, fra andre foreninger af sjældne sygdomme. ikke mindst fordi de berørte faggrupper ikke kender til vores sygdom.
En lignende social profil vil blive lavet for HSP.


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